Biography:
A public advocate for human rights is the founder and president of the Alliance for Human Research Protection (AHRP) which serves as an information resource and public interest watchdog organization whose goal is to unlock the walls of secrecy in biomedical research and bring accountability to that endeavor. The AHRP Infomails have a wide following within the scientific community, as well as among public officials, journalists, lawyers, and patient advocacy organizations. The AHRP website www.ahrp.org serve as a catalyst for public debate. She has testified before academic and government sponsored public policy advisory forums, including the Institute of Medicine, Int’l Global Harmonization Task Force, National Public Health Assoc., US Military Ethics Forum, National Bioethics Advisory Committee, on topics that include: Unethical experimentation on mentally disabled psychiatric patients; ethics of drug research on prisoners, children; human pesticide experiments; unethical medical device trials; ethics of mental screening; America’s overmedicated children; conflicts of interest. Recent peer-reviewed pubs include: Screening for Mental Illness: The Merger of Eugenics and the Drug Industry, Ethical Human Psychology and Psychiatry (2005); Conflicts of Interest in Biomedical Research Harm Children With and Without Disabilities,” J Disability Policy Studies (2004); “The Impact of FDAMA on the recruitment of children for research,” EHPP (2003); “Children in Clinical Research: A Conflict of Moral Values," Am J Bioethics (2003)